Impact of IPF diagnosis on patient quality of life
Vincent Cottin discusses the impact of diagnosis on patients
The impact of IPF on the life of a patient is very strong and heavy and when you listen to patients who discuss together you realize that the physicians always under-evaluate the impact of the disease on the patient’s life.
The impact of the disease on the patient’s life may come from the symptoms, obviously if you have cough all the time or if you have a progressive shortness of breath you have a strong, important limitation to all exercise and everyday life activities. But also the impact comes from the anxiety and the knowledge to have a severe disease, and patients go to the internet, they ask the doctor and they soon know that this is a lethal disease with a median survival of about three years. So this is also something that they know and they have to live with and for some of them this is a reason of limiting their social life even sometimes with the family. They also fear to have these acute exacerbations because they know, we tell them, because they ask, that they may experience sudden impairment in their functional abilities that is not predictable and that is very difficult to treat and with a high mortality.